ME/CFS
Moderate → no benefit
ME/CFS: times unable to do anything, still limited; screen-darkening apps and sunglasses
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Aug 2026
In their words
- At worst: Moderate
Mouthwash on days when I can't do much. Very low spoons
In context ↗ - Now: No benefit
Holding a stress item, fidget, plush, whatever; helps even when I can't actually do anything with it
In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
A Reddit user in a CFS forum who in September 2024 managed a small grocery run, helped by their husband, for the first time in ages. They use non-UV sunglasses and apps that darken screens for screen pain, mouthwash on days they cannot brush their teeth, and a homemade electrolyte drink of salt, potassium salt substitute and lemon juice that they say works really well. In August 2026 they still described times when they cannot actually do anything.
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What they tried
Also tried
Alcohol-free fluoride mouthwash (ACT restore)· HelpedTylenol· HelpedSunglasses· HelpedBlue Light Filter app· HelpedDIY electrolyte drink (salt, potassium salt alternative, lemon juice)· Helped
Their words about each treatment
- Alcohol-free fluoride mouthwash (ACT restore) · Helped
It's what I use when I'm not able to brush, and its better than nothing.
In context ↗ - Tylenol · Helped
Tylenol works well for me but use what works for you.
In context ↗ - Sunglasses · Helped
The only things I've found that help are actual sunglasses(not UV ones, they make screens weird and a different kind of painful)
In context ↗ - Blue Light Filter app · Helped
apps to make screens darker than 100%.
In context ↗ - DIY electrolyte drink (salt, potassium salt alternative, lemon juice) · Helped
I've found that salt, a potassium based salt alternative ... and lemon juice in water works really well.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2024-09-19 | Small grocery run, first in ages, husband helped with the movingWas able to do a small grocery run for the first time in ages!In context ↗ | Moderate |
| 2026-08-26 | Still limited on some days; a fidget helpshelps even when I can't actually do anything with itIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Light & noise sensitivity
The only things I've found that help are actual sunglasses(not UV ones, they make screens weird and a different kind of painful)
In context ↗