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ME/CFS Moderate → no benefitIll for 5 years

Housebound with ME/CFS for a year, no improvement; napping eases symptoms

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
5 years
Last post
May 2024
In their words
  • Condition: ME/CFS4 years Mild and I've now been housebound for a year. In context ↗
  • At worst: ModerateI've now been housebound for a year. In context ↗
  • Now: No benefit4 years Mild and I've now been housebound for a year. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Spruce 71328 wrote that they had ME/CFS for four years at a mild level before becoming housebound for a year, as of May 2024. They said napping relieves their symptoms and helps when facial pain and headaches hit, though specialists told them to rest rather than sleep. They named no trigger or cause.

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What they tried

Also tried

Their words about each treatment
  • napping · HelpedIt helps relieve symptoms for me, so when I get facial pain and headaches and sometimes I don't have a choice but to nap. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y4 y5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
onsetME/CFS began, mild for four yearsExactly what happened to me, 4 years Mild In context ↗Mild
2023became housebound after four years of mild illnessI've now been housebound for a year In context ↗Moderate
2024-05-16still housebound a year onModerate

Symptoms mentioned

Their words about their symptoms
  • Headaches & migrainewhen I get facial pain and headaches In context ↗

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Asking aboutSpruce 71328’s story

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