Condition not stated
Outcome unclear
Light and sound sensitivity, weakness and easy fatigability; recovery quick, PEM immediate
- Condition
- Condition not stated
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Oct 2026
In their words
- Condition: Condition not stated
I feel like I have some hallmarks of ME/CFS but that maybe it doesn’t quite fit the marker.
In context ↗ - At worst: Mild
if I walk a mile I’ll have to lay down for an hour and a half
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user with more severe MCAS, moderate-ish POTS, mild hEDS and vascular compressions reported light and sound sensitivity, easy fatigability and weakness. A mile walk required lying down for about 90 minutes; overdoing things could mean 1–2 days down, but recovery was quick and PEM immediate rather than delayed. They wondered whether this was mild or moderate ME/CFS or neuro overwhelm from existing conditions.
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Symptoms mentioned
Light & noise sensitivityMast cell (MCAS) & allergiesMuscle weaknessPOTS & dysautonomiaPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
the PEM is always immediate, not delayed
In context ↗ - Light & noise sensitivity
I experience a lot of light sensitivity, sound sensitivity
In context ↗ - Muscle weakness
I’m very weak and get tired quite easily
In context ↗ - POTS & dysautonomia
moderate-ish POTS
In context ↗