ME/CFS
Mild → no benefitIll for 10 years
Ten years of constant exhaustion and excessive sleep with ME/CFS, no improvement
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 10 years
- Last post
- Mar 2023
In their words
- Condition: ME/CFS
I have, for about ten years, been dead tired all the time.
In context ↗ - At worst: Mild
I have lost so much time being tired, and it is affecting my work and life
In context ↗ - Now: No benefit
I have periods of recuperation but mostly not. I sleep so much and so often, it never helps.
In context ↗ - Began after: nothing they could name
I have, for about ten years, been dead tired all the time.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Lake 14156 reported about ten years of constant exhaustion and excessive sleep that never helped, with only occasional periods of recuperation. The fatigue affected work and life, and the user was having lab tests to rule out iron and other issues while medications for bipolar and depression were helping. No diagnosis, treatment or improvement was reported.
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What they tried
Also tried
meds that help both· Not said
Their words about each treatment
- meds that help both · Not said
being on meds that help both
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about ten years before March 2023 | onset of constant exhaustion and excessive sleepI have, for about ten years, been dead tired all the time.In context ↗ | Mild |
| 2023-03-07 | still exhausted, awaiting lab testsI have lost so much time being tired, and it is affecting my work and lifeIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I sleep so much and so often, it never helps.
In context ↗