ME/CFS
Severe → no benefitIll for 4 years
Severely ill with ME/CFS for almost four years, no improvement; quetiapine aids sleep
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 4 years
- Last post
- Aug 2023
In their words
- Condition: ME/CFS
Severely ill for almost 4 years
In context ↗ - At worst: Severe
Severely ill for almost 4 years
In context ↗ - Now: No benefit
Wierdly I look healthier then when I was still walking around ... Severely ill for almost 4 years
In context ↗
Summary
They have been severely ill for almost four years; by mid-2023 they could not go outside because of their eyes and ears and bought plates and cutlery that made life a bit easier. A 6 mg dose of quetiapine helps them get to sleep and quiet their mind. They say they look healthier than when they were still walking around and partying, which they link to no longer smoking or drinking. No recovery is reported.
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What they tried
Their words about each treatment
- quetiapine · Helped
I take 6mg quetiapine to go to sleep. Extremely low dose but it does the trick for me
In context ↗ - disposable plates and cutlery · Helped
I bought them too a week ago. And also knives forks spoons. It makes life a bit easier.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2019 | became ill with ME/CFSSeverely ill for almost 4 yearsIn context ↗ | Not stated |
| 2023-08-09 | housebound by sensory overload, needs quetiapine to sleep | Severe |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I take 6mg quetiapine to go to sleep
In context ↗ - Light & noise sensitivity
I can't go outside because of my eyes and ears
In context ↗