ME/CFS
Severe → near normal
Severely ill with ME/CFS, nearly back to normal after finding a complementary body system
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2024
In their words
- Condition: ME/CFS
I went from severe with life expectancy of 38-42, to very occasional at the age of 55.
In context ↗ - At worst: Severe
I went from severe with life expectancy of 38-42
In context ↗ - Now: Near normal
to very occasional at the age of 55
In context ↗
Read from 6 of their posts and comments; links to the 4 this page draws on
Summary
They described being severely ill, given in 2009 a life expectancy of 12-18 months, with a faulty pituitary gland expected to limit their life to 38-42 years. Many alternative therapies helped only some; they later said previously failed methods worked once they found a 'complimentary body system' they explained in a book and blog. At 55 they were only very occasionally unwell.
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What they tried
Also tried
keeping the bottle or one of the pills in my pocket for 48 hours· Helped a lotmany alternatives· Helpedsupplements· Helpedgluten free, egg free, dairy free, soy free, corn free and preservative free diet· No changegluten free, egg free, dairy free, soy free, corn free and preservative free diet· No changeprobiotics· No change
Their words about each treatment
- many alternatives · Helped
Tried many alternatives. They helped some.
In context ↗ - keeping the bottle or one of the pills in my pocket for 48 hours · Helped a lot
I keep the bottle or one of the pills in my pocket for 48 hours. ... It made a big difference for me.
In context ↗ - supplements · Helped
the supplements make a difference when I start taking them
In context ↗ - gluten free, egg free, dairy free, soy free, corn free and preservative free diet · No change
I was on the gluten free, egg free, dairy free, soy free, corn free and preservative free diet for five plus years.
In context ↗ - probiotics · No change
Took probiotics then too. Didn’t fix me.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2009 | severely ill; given a life expectancy of 12-18 monthsin 2009 I was given a life expectancy of 12-18 monthsIn context ↗ | Severe |
| 2024 (age 55) | improved to being only very occasionally unwellI went from severe with life expectancy of 38-42, to very occasional at the age of 55.In context ↗ | Near normal |