ME/CFS
Mild → somewhat better
Working with ME/CFS and struggling with sleep, somewhat better with an extra hour of sleep
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Jan 2022
In their words
- Condition: ME/CFS
As you guys will know the irony of CFS is sleep is a struggle
In context ↗ - At worst: Mild
I went from having to travel to work 2 hours a day to working from home with no commute.
In context ↗ - Now: Somewhat better
It potentially got better for me, I went from having to travel to work 2 hours a day to working from home with no commute.
In context ↗
Summary
With CFS, Gull 58840 was working and travelling two hours a day for work, and described sleep as a struggle. A first jab caused about 48 hours of sped-up flu-like tiredness without a full crash; a second did nothing. When the job moved to home, the lost commute gave an extra hour of sleep, which made a massive difference, though sleep remained hard.
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What they tried
Also tried
working from home with no commute· Helpedthe jab· Worse
Their words about each treatment
- the jab · Worse
First jab for me gave me 48 hours sped up version of when you get regular ill. 2nd time nothing. Tired me out but didnt cause a full crash or anything
In context ↗ - working from home with no commute · Helped
It potentially got better for me, I went from having to travel to work 2 hours a day to working from home with no commute.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | living with CFS while travelling two hours a day to workI went from having to travel to work 2 hours a day to working from home with no commute.In context ↗ | Mild |
| 2022-01-09 | working from home and gaining an extra hour of sleepIt potentially got better for me ... that extra hour of 'sleep' because I could roll out of bed 5 minutes before has made a massive difference!In context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“First jab for me gave me 48 hours sped up version of when you get regular ill.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
the irony of CFS is sleep is a struggle
In context ↗