Long COVID with a much worse second wave, improved then relapsed; keto helped
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 2.5 years
- Last post
- Feb 2025
In their words
- Condition: Long COVID
I have had long covid twice (6months 1st time, which was 2 years ago. And currently 5 months into my 2nd round).
In context ↗ - Now: Relapsed
I thought I was getting better and close to recovered then got a 2nd wave that was much worse around the 6month mark.
In context ↗ - Began after: COVID
I have had long covid twice (6months 1st time, which was 2 years ago.
In context ↗
Read from 12 of their posts and comments; links to the 8 this page draws on
Summary
After COVID in about 2022, the user had a six-month round of long COVID; building activity up gradually was key, things improved exponentially and they got through it. A second round began in 2024; they later thought they were getting better before a much worse second wave around the six-month mark. By late 2024 they had had waves of improvement but were in a bad patch of fatigue; a keto diet helped within days, while creatine gave daytime energy but wrecked their sleep.
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What they tried
What they credit
Also tried
Their words about each treatment
- Building up to things · Helped
Building up to things was key for me, and things got exponentially better first time round
In context ↗ - Cannabis THC and or CBD · Worse
It made things worse for me. Gave me really bad fatigue, racing head and anxiety.
In context ↗ - LDN · Not said
I started on 0.5mg and increased to 2mg over 3 weeks. It gave me crazy vivid dreams and disrupted my sleep a bit.
In context ↗ - keto diet · Helped
Have you tried the keto diet? I have similar symptoms and felt an improvement after a couple of days.
In context ↗ - creatine · Helped
It gave me an energy boost and I felt a bit better after taking it. But it also messed with my sleep big time. I have tried a few times but have had to stop each time
In context ↗
Approaches: Diet · Physiotherapy and rehab
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | COVID followed by a first round of long COVID lasting about six monthsI have had long covid twice (6months 1st time, which was 2 years ago.In context ↗ | Not stated | |
| 2023, about six months in | first round resolved; building activity up gradually was keyBuilding up to things was key for me, and things got exponentially better first time round ... And most importantly I got through it the first time | Recovered | Graded rehab and self-made programmes |
| 2024 | second round of long COVIDcurrently 5 months into my 2nd roundIn context ↗ | Not stated | |
| October 2024 | second wave much worse around the six-month mark; felt they were slowly dyingI thought I was getting better and close to recovered then got a 2nd wave that was much worse around the 6month mark.In context ↗ | Not stated | |
| January 2025 | keto diet gave improvement in similar symptoms after a couple of daysI have similar symptoms and felt an improvement after a couple of days.In context ↗ | Not stated | Keto and low-carb diets |
| February 2025 | creatine gave an energy boost but badly disrupted sleepIt gave me an energy boost and I felt a bit better after taking it. But it also messed with my sleep big time.In context ↗ | Not stated | Creatine |
| February 2025 | waves of improvement with a bad patch of fatigue; creatine helps daytime energy but blocks sleepI have had waves of improvement but I’m currently going through a bad patch of fatigue. ... it helps me during the day but I can’t sleep when I use it. | Not stated |
Adverse events
- “It made things worse for me. Gave me really bad fatigue, racing head and anxiety.” In context ↗ Made symptoms worse
- Low-dose naltrexone“It gave me crazy vivid dreams and disrupted my sleep a bit.” In context ↗ Insomnia from treatment
- Creatine“It gave me an energy boost and I felt a bit better after taking it. But it also messed with my sleep big time.” In context ↗ Insomnia from treatment
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
I have similar symptoms and felt an improvement after a couple of days.
In context ↗ - Sleep problems
Not a flare up, just really bad insomnia.
In context ↗
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