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Long COVID Moderate → somewhat betterIll 18 months before improving or writing

Mostly homebound with long COVID, now somewhat better after salt pills and magnesium

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
18 months
Last post
Nov 2022
In their words
  • Condition: Long COVIDIt all started shortly after catching COVID-19 a second time. In context ↗
  • At worst: ModerateI was a healthy, active 30-something before the vaccine and now I spend most days homebound with symptom after symptom. In context ↗
  • Now: Somewhat betterA cardiologist prescribed salt pills and an ENT recommended magnesium and B2 supplements ... It has helped me tremendously. In context ↗
  • Began after: a vaccinationIn the same year of getting the vaccine, I developed something called Postural Orthostatic Tachycardia Syndrome (POTS) In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

Cove 20964, a healthy, active 30-something, developed POTS in the year they received the Pfizer vaccine and booster, and spent about 18 months in and out of the ER and mostly homebound. A second COVID-19 infection in June 2022 brought four months of scrotal pain diagnosed as epididymitis. Salt pills plus magnesium and B2 helped their vertigo, headaches and dizziness tremendously.

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What they tried

Their words about each treatment
  • a certain type of antibiotics · WorseI had this happen when i was on a certain type of antibiotics. I had to stop the antibiotics because I was having an adverse reaction. In context ↗
  • Cipro · WorseI couldn't take Cipro or Bactrim because of an adverse reaction to both. In context ↗
  • Cephalexin · No changeNow I am currently on Cephalexin for the past 3 weeks but it doesn't seem to be doing much. In context ↗
  • salt pills · HelpedA cardiologist prescribed salt pills ... It has helped me tremendously. In context ↗
  • magnesium · Helpedan ENT recommended magnesium and B2 supplements ... It has helped me tremendously. In context ↗
  • COVID vaccination as treatment · Not saidIn the same year of getting the vaccine, I developed something called Postural Orthostatic Tachycardia Syndrome (POTS) that landed me in and out of the ER multiple times In context ↗

Approaches: POTS medication · Supplements

Their path

Very severeSevereModerateMildNear normalRecovered15 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 14 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2021POTS began in the same year as the COVID vaccineIn the same year of getting the vaccine, I developed something called Postural Orthostatic Tachycardia Syndrome (POTS) In context ↗Not stated
June 2022second COVID-19 infection, then four months of scrotal pain (epididymitis)My second time catching COVID-19 was this past June. Since then, I've been having issues with scrotum pain. In context ↗Moderate
2022-10-04mostly homebound with symptom after symptom, in and out of the ERnow I spend most days homebound with symptom after symptom In context ↗Moderate
2022-11-11salt pills plus magnesium and B2 helped vertigo, headaches, dizziness and balanceIt has helped me tremendously. In context ↗ModerateSalt, electrolytes and fluids

Adverse events

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaI developed something called Postural Orthostatic Tachycardia Syndrome (POTS) In context ↗
  • Headaches & migraineI was diagnosed with POTS as well as vestibular migraines In context ↗
  • Vision problemsI had this happen when i was on a certain type of antibiotics. In context ↗

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