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ME/CFS Outcome unclear

ME/CFS with post-exertional malaise; phenylephrine relieved PEM for two days

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Jun 2021
In their words
  • Condition: ME/CFSit relieved me of my PEM like never before In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Bramble 28242, writing in r/cfs in June 2021 from France, described having ME/CFS with post-exertional malaise and said vasoconstrictors available there helped a little. They tried phenylephrine, which relieved their PEM like never before for two amazing days, and were waiting for a larger quantity to test over a longer period. No onset, functional level or overall outcome was given.

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What they tried

Also tried

phenylephrine· Helped a lotvasoconstrictors· Helped
Their words about each treatment
  • vasoconstrictors · HelpedI had noticed that vasoconstrictors available here were helping a little. In context ↗
  • phenylephrine · Helped a lotit relieved me of my PEM like never before during two amazing days In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
—Ill with ME/CFS; vasoconstrictors helped a littleI had noticed that vasoconstrictors available here were helping a little. In context ↗
—phenylephrine relieved PEM for two daysit relieved me of my PEM like never before during two amazing days In context ↗
2021-06-13waiting for a larger quantity to test longerI’m now waiting for a bigger quantity so I can test it on a longer period of time. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseit relieved me of my PEM like never before In context ↗

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Asking aboutBramble 28242’s story

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