Miruvor
Sign up
ME/CFS Mild → no benefit

ME/CFS with very little energy, no improvement; back support for sitting

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
May 2024
In their words
  • Condition: ME/CFSthis condition is about survival and thriving as best you can In context ↗
  • At worst: MildI'm on my feet a majority of the day at work, i try to eat food that is good for me and drink water. In context ↗
  • Now: No benefitDoing my hair sucked all my energy for the day. In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

Request to remove this story

Summary

In May 2024 they were still on their feet for most of the day at work but had very little energy, and gave up exercise as not worth it. Splitting showering across two days backfired, with washing their hair costing them the day's energy. Back support in a gaming chair let them sit up for longer, though they showered sitting on the edge of the tub and wanted a shower chair.

Ask Miruvor AI

Asking aboutFox 20322’s story

What they tried

Also tried

gaming chair· Helpedexercise· Worsebreaking up showering into two days· Worseeat food that is good for me and drink water· Not said
Their words about each treatment
  • exercise · WorseI tried to use energy to exercise but then i realized that i was using the very little energy to do just that and that it wasn't worth it. In context ↗
  • eat food that is good for me and drink water · Not saidi try to eat food that is good for me and drink water In context ↗
  • breaking up showering into two days · WorseI tried breaking up showering into two days, body one day and hair another day,, worst decision ever. In context ↗
  • gaming chair · HelpedI have a gaming chair i sit in when watching tv ... having back support has extended my ability to sit up for longer periods of time In context ↗

Ask Miruvor AI

Asking aboutFox 20322’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime