Long COVID
Severe → no benefit
In bed 80% of the day with long COVID, no improvement after Trileptal and ivermectin
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Oct 2021
In their words
- Condition: Long COVID
Long haul symptoms (low grade fever 3 months)
In context ↗ - At worst: Severe
I literally am in bed 80 percent of the day
In context ↗ - Now: No benefit
I literally am in bed 80 percent of the day which would cause anyone to be depressed
In context ↗ - Began after: COVID
Long haul symptoms (low grade fever 3 months)
In context ↗
Summary
Posting in long-COVID and ME/CFS forums, the user described long-haul symptoms including a low-grade fever and being in bed about 80% of the day, with lifelong depression that the infection unexpectedly lifted. Trileptal eased their restlessness after an anxiety PRN had only made them tired, Valtrex did nothing, and they had just started ivermectin. They were still in bed most of the day at their last post.
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What they tried
Also tried
Their words about each treatment
- anxiety prn · No change
the anxiety prn never did much of anything besides makes me tired
In context ↗ - trileptal · Helped
I started trileptal and it has helped with the restlessness
In context ↗ - valtrex · No change
I'm on valtrex it's doing nothing
In context ↗ - ivermectin · Not said
started ivermectin 4 days ago
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | long-haul symptoms began, including low-grade feverLong haul symptoms (low grade fever 3 months)In context ↗ | Not stated |
| 2021-10-03 | Trileptal eased restlessnessI started trileptal and it has helped with the restlessness the anxiety prn never did much of anythingIn context ↗ | Severe |
| 2021-10-26 | still in bed most of the dayI literally am in bed 80 percent of the dayIn context ↗ | Severe |
Adverse events
- “the anxiety prn never did much of anything besides makes me tired” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Flu-like symptoms
Long haul symptoms (low grade fever 3 months)
In context ↗ - Anxiety & low mood
can't remember a time I wasn't depressed since childhood
In context ↗