ME/CFS
Severe → much better
Severe ME/CFS, now much better though still disabling
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2025
In their words
- Condition: ME/CFS
I have CFS that used to be severe but is now relatively mild (though still disabling).
In context ↗ - At worst: Severe
I have CFS that used to be severe but is now relatively mild
In context ↗ - Now: Much better
I have CFS that used to be severe but is now relatively mild (though still disabling).
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Moon 78534 has CFS that used to be severe and is now relatively mild, though still disabling. In July 2025 they reported trying modafinil and armodafinil at their highest available doses; neither helped their fatigue. Modafinil caused serious emotional side effects; armodafinil caused milder emotional side effects and always ended in physical and emotional crashes. They had never tried other stimulants.
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What they tried
Also tried
Their words about each treatment
- Modafinil · Worse
Modafinil gave me serious emotional side effects.
In context ↗ - Armodafinil · Worse
Armodafinil seemed to have mild positive effects that were probably placebo and always ended in a physical and emotional crash.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | CFS at its most severeI have CFS that used to be severeIn context ↗ | Severe |
| 2025-07-07 | now relatively mild but still disablingis now relatively mild (though still disabling)In context ↗ | Mild |
Adverse events
- Modafinil / armodafinil“Modafinil gave me serious emotional side effects.” In context ↗ Mood or psychiatric effects
- Modafinil / armodafinil“Armodafinil gave me milder emotional side effecfs.” In context ↗ Mood or psychiatric effects
- Modafinil / armodafinil“Armodafinil seemed to have mild positive effects that were probably placebo and always ended in a physical and emotional crash.” In context ↗ Made symptoms worse
- Modafinil / armodafinil“Somehow, the smaller doses sedated me and made my fatigue and sleepiness worse.” In context ↗ Made symptoms worse