ME/CFS
Very severe → somewhat better
Extremely severe ME/CFS, improved to very severe, rationing energy for showers and food
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- Not stated
- Last post
- Apr 2024
In their words
- Condition: ME/CFS
I got extremely severe ME/CFS
In context ↗ - At worst: Very severe
I used to be extremely severe but improved to very severe. ... My days are a copious calculation of energy I can use to house myself, take showers, and eat.
In context ↗ - Now: Somewhat better
I used to be extremely severe but improved to very severe.
In context ↗ - Began after: nothing they could name
I noticed lacking - in eagerness to go to a surfing camp together, in my ability to work and study in a foreign language.
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A person with ME/CFS, moderate to severe on a CFS scale while in grad school abroad. A psychiatrist gave them antipsychotics without evaluation; their judgement was impaired, they were raped shortly after, and their illness progressed to severe and then extremely severe. They lost their partner of 10 years. They improved from extremely severe to what they call very severe, now rationing energy for showers and food.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- antipsychotics · Worse
The meds impaired my judgement and agency. ... My illness had progressed to severe.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| grad school | noticed declining ability to work, study and join activitiesAccording to the newly published scale, I had moderate to severe CFS.In context ↗ | Moderate |
| — | given antipsychotics by a psychiatrist without evaluation, then raped; illness progressedMy illness had progressed to severe.In context ↗ | Severe |
| — | extremely severeI used to be extremely severe but improved to very severe.In context ↗ | Very severe |
| 2024-04-14 | improved from extremely severe to what she calls very severe; mostly in bed rationing energySometimes I can go outside to look at a cherry tree and this is the most beautiful moment of my week.In context ↗ | Severe |
Adverse events
- Antipsychotics (unspecified)“I went to a psychiatrist who, without performing any diagnostic evaluation, gave me antipsychotics. The meds impaired my judgement and agency.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
I believed I had caused it, and that I have a psychiatric illness that makes me socially withdrawn, depressive
In context ↗