ME/CFS
Moderate → no benefit
Unable to work with ME/CFS fatigue, still no better after iron and routine changes
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- quite a few years
- Last post
- Dec 2025
In their words
- Condition: ME/CFS
I’ve been struggling with chronic fatigue for quite a few years now.
In context ↗ - At worst: Moderate
The fatigue is debilitating for me. I can’t work. I’ve had a couple jobs over the last few years but I would burn out after a month
In context ↗ - Now: No benefit
yet I’m still not feeling better:(
In context ↗
Summary
They have struggled with chronic fatigue for a few years and are anaemic with thalassaemia trait. Iron supplements for months did not improve the fatigue, and a sleep-apnoea test was negative. Pushing to keep therapy-recommended routine changes made them worse the following days, with nausea forcing them to lie down, and they could not hold a job. At the latest post they were still exhausted and no better.
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What they tried
Also tried
Journalling· Helpediron supplements· No changeeating more foods with iron· No changetherapy· No change
Their words about each treatment
- iron supplements · No change
I took iron supplements for a few months and my fatigue didn’t improve. I got discouraged and stopped taking them.
In context ↗ - eating more foods with iron · No change
i started eating more foods with iron on a daily basis. I got a blood test a couple months ago and still am anemic
In context ↗ - therapy · No change
I’ve been doing therapy for a couple years and a focus of that was to change my routine and lifestyle to reduce my fatigue. However it wasn’t helping.
In context ↗ - Journalling · Helped
Journalling also helps me but also can be quite difficult for me to be consistent with
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| onset | Chronic fatigue began a few years before postingI’ve been struggling with chronic fatigue for quite a few years now.In context ↗ | Not stated |
| 2025-12-28 | Still exhausted and unable to work after years of pushing and restingI spend so much time resting because I physically/mentally have no other choice yet I’m still not feeling betterIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I would push myself to incorporate these lifestyle changes ... and I would suffer for it with even worse fatigue the following days
In context ↗ - Gut problems
my body forcing me to lay down with extreme nausea
In context ↗ - Anxiety & low mood
It really is so therapeutic for my anxiety/depression as well.
In context ↗