ME/CFS
Mild → no benefit
ME/CFS with PEM, worse than ever after stopping Ritalin
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Aug 2020
In their words
- Condition: ME/CFS
After that for two months I felt generally good, had a great vacation with loads of walking (usually unlikely), and also started to skateboard, but still had PEM
In context ↗ - At worst: Mild
had a great vacation with loads of walking (usually unlikely), and also started to skateboard, but still had PEM
In context ↗ - Now: No benefit
my symptoms were worse than ever and have stayed that way
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Sandpiper 24218 tried bupropion (Wellbutrin), which left them numb for a month then generally good for two months, with a walking holiday and skateboarding, though PEM remained. They stopped it after three months without much withdrawal, having got a Ritalin prescription. Stopping Ritalin after three months left their symptoms worse than ever; they later used Lyrica off-label for energy and depression, which also made them feel heavy and dazed.
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What they tried
Their words about each treatment
- wellbutrin · Helped
I was on wellbutrin for a short time ... After that for two months I felt generally good
In context ↗ - ritalin · Helped
when I did get off ritalin half a year ago after 3 months of use my symptoms were worse than ever and have stayed that way
In context ↗ - lyrica · Helped
I use it now off-label and it gives me a very nice energetic feeling for hours, makes all my depression go away
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| — | ME/CFS with PEMbut still had PEMIn context ↗ | Not stated | |
| — | felt generally good on bupropion, walking holiday and skateboardingAfter that for two months I felt generally good, had a great vacation with loads of walking (usually unlikely), and also started to skateboard, but still had PEMIn context ↗ | Mild | Bupropion (Wellbutrin) |
| about six months before 2020-08-20 | stopped Ritalin, symptoms worse than everwhen I did get off ritalin half a year ago after 3 months of use my symptoms were worse than ever and have stayed that wayIn context ↗ | Not stated | |
| 2020-08-20 | on Lyrica now, energetic but heavy and dazedI use it now off-label and it gives me a very nice energetic feeling for hours, makes all my depression go away, but also makes me feel sort of "heavy" and dazedIn context ↗ | Not stated |
Adverse events
- Bupropion (Wellbutrin)“really just made me so numb the first month that anything after that was good” In context ↗ Side effects
- Methylphenidate (Ritalin, Concerta)“when I did get off ritalin half a year ago after 3 months of use my symptoms were worse than ever and have stayed that way” In context ↗ Withdrawal problems
- Pregabalin (Lyrica)“makes me feel sort of "heavy" and dazed, sort of like the come down from weed” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
but still had PEM
In context ↗ - Anxiety & low mood
makes all my depression go away
In context ↗