Barely able to walk with ME/CFS, now a little better after daily sea dips
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
I think deconditioning plays a big role in our disease progression
In context ↗ - At worst: Severe
I could barely walk and I felt my limps super heavy.
In context ↗ - Now: Somewhat better
I managed to improve a little after that experience. My body came back online (still far away from my previous baseline)
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Glade 14649 describes a sudden deterioration three months ago after a whiplash injury, when their body collapsed, they could barely walk, their limbs felt heavy and they could not sleep. They began going into the sea near their home day after day, starting with three minutes, and improved a little: sleep returned, they can take small walks with their dog and do 20 minutes of qigong, though still far below their previous baseline.
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What they tried
What they credit
Also tried
Their words about each treatment
- going to the beach (cold sea water, swimming) · Helped
I managed to improve a little after that experience. My body came back online (still far away from my previous baseline)
In context ↗ - chi Qong exercises · Not said
do chi Qong exercises for 20 minutes etc.
In context ↗
Approaches: Alternative therapies
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| May 2026 | sudden deterioration after a whiplash injury; could barely walk, limbs heavy, could not sleep3 months ago I experience a sudden deterioration of my symptoms (plus new ones) after a whiplash injury.In context ↗ | Severe |
| August 2026 | daily sea swimming; improved a little, can sleep, walk the dog and do 20 minutes of qigongLong story short, I managed to improve a little after that experience. My body came back online (still far away from my previous baseline), but at least now I can sleep, go small walks with my dog, do chi Qong exercises for 20 minutes etc.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I couldn’t sleep (I woke up every 5 minutes due to sleep apnea episodes)
In context ↗ - Muscle weakness
I could barely walk and I felt my limps super heavy
In context ↗ - Post-exertional malaise
I returned home and I was wiped out for the rest of the day.
In context ↗
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