Long COVID
Severe → much betterNeeds ongoing treatment
Long COVID left them resting all day for months, now much better despite a recent crash
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2025
In their words
- Condition: Long COVID
I only really found out about ME/CFS/PEM in the last year
In context ↗ - At worst: Severe
I've had my share of resting all day for months around 3 years ago
In context ↗ - Now: Much better
Resting a lot outside of work (mainly all I do) ... constant crash in the last weeks
In context ↗ - Began after: COVID
when everything went wrong after my 2nd time COVID
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Marsh 87969 has had long COVID for about three years, beginning with a second COVID infection that left them resting all day for months. They later improved enough to do a lot and started a job they enjoy in March 2025, though they rest heavily outside work. In recent weeks they have been in a constant crash and fear months of all-day rest again; they try things on their own as help is hard to get.
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What they tried
Also tried
Their words about each treatment
- Resting a lot outside of work · Not said
Resting a lot outside of work (mainly all I do) ... I've had my share of resting all day for months around 3 years ago
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| ~3 years ago (2022) | second COVID; everything went wrong, rested all day for monthsI've had my share of resting all day for months around 3 years ago (when everything went wrong after my 2nd time COVID)In context ↗ | Severe |
| earlier this year (2025) | improved enough to do a lot and started a job in MarchWhich wasn't great, but much better than now. Could still do a ton (even looking at earlier this year)In context ↗ | Mild |
| last weeks before 2025-07-30 | constant crash in recent weeksapart from my constant crash in the last weeksIn context ↗ | Mild |