Mostly bedridden and homebound with ME/CFS, now close to normal
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 11 years
- Last post
- May 2025
In their words
- At worst: Severe
I've been homebound and most days bedridden for a bit over 2 years.
In context ↗ - Now: Near normal
I've been working full time for years now ... I wouldn't say my life is normal
In context ↗
Summary
Owl 57078 fell ill around 2014 and spent the first two years mostly bedridden and homebound. They improved gradually: by 2017 they were back at work four days a week, sleeping at least 15 hours on days off, and by 2025 they had worked full time from home for years, walked almost daily and gone a long time without a full crash. They still pace carefully and expect flares.
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What they tried
What they credit
Their words about each treatment
- being very aware of the small signals my body gives me when I am overdoing it · Helped
Haven't had a real full on crash for a while as I've been very aware of the small signals my body gives me when I am overdoing it.
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | Illness onset; homebound and mostly bedriddenMy first 2 years, I was mostly bedridden.In context ↗ | Severe |
| 2017-06-24 | Back to work four days a week, no longer bedriddenI have seen a huge improvement though. I'm back to work 4 days a weekIn context ↗ | Mild |
| 2025-05-22 | Working full time from home for years, daily short walks, no full crash for a whileI've been working full time for years now, but I work from home so I can take my naps during my breaks, I also take a short walk almost everydayIn context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I know I will have huge flares again in the future
In context ↗ - Sleep problems
I can take my naps during my breaks
In context ↗
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