ME/CFS
Outcome unclearNeeds ongoing treatment
ME/CFS, insanely thirsty after COVID and downhill when fluids lapsed; no overall change
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Dec 2022
Summary
Mesa 69417 described ME/CFS as faulty cellular energy production and emphasised rest, reduced activity and an energy journal to avoid getting sicker. They named a robot vacuum, kettle and privacy glass among their household must-haves. A third COVID infection in late December 2022 made them insanely thirsty, and they went downhill quickly whenever fluids lapsed. No change in their overall level was reported.
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What they tried
Also tried
Their words about each treatment
- rest · Not said
Rest is the answer. ... You need to rest more, or do less.
In context ↗ - Roomba/ robot hoover · Helped
a roomba was a great investment for us
In context ↗ - fluids · Helped
If I let my fluids lapse, I go downhill quickly. So drink, drink, drink.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | Living with ME/CFS; onset date not giventhere is a balancing act between mental and physical health with this illnessIn context ↗ |
| December 2022 | third COVID infection; goes downhill quickly if fluids lapseI've had covid (third time) this last week. It makes me insanely thirsty. If I let my fluids lapse, I go downhill quickly.In context ↗ |