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Long COVID Severe → much betterIll 2.5 years before improving or writing

Unable to do housework for two years with long COVID, now much better with iron and B12

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
2.5 years
Last post
Jun 2024
In their words
  • Condition: Long COVIDI was dealing with something similar to this, among other things. In context ↗
  • At worst: Severecould not even get off the couch to do minor house work for over two years In context ↗
  • Now: Much betterOver the past two or three months, my life has turned around. ... I’m still healing from the cardiomyopathy In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

A long-COVID forum user could not get off the couch for minor housework for over two years, including the year before their daughter's birth; they went into heart failure with their daughter, had arrhythmia and dangerous anaemia, and were still healing from cardiomyopathy. About two months before December 2023 they started iron, methylcobalamin B12 and high-dose vitamin D and said their life had turned around, though they were still scared. Two SSRIs had given them severe suicidal ideation.

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What they tried

Also tried

Their words about each treatment
  • Ferrous sulfate 325 mg (iron) · HelpedOver the past two or three months, my life has turned around. In context ↗
  • Vitamin C gummies · Helpedvitamin c helps the body absorb the iron In context ↗
  • Methylcobalamin B-12 · Helped**Methylcobalamin B-12, 1,500-3,000 mcg daily** In context ↗
  • D-3 · Helped**D-3 50,000 IU** (*once a week for 6-8 weeks, then once a month*) In context ↗
  • SSRIs · Worsethe first two I took gave me severe sewerslidal ideation and I almost took the big sleep In context ↗

Approaches: Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
before 2021couch-bound for over two years, through heart failure, arrhythmia and dangerous anaemiacould not even get off the couch to do minor house work for over two years In context ↗Severe
about two to three months before 2023-12-19life turned around after starting supplements (iron, methylcobalamin B12, vitamin D), still healing cardiomyopathyOver the past two or three months, my life has turned around. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Heart symptoms & palpitationsI went into heart failure with my daughter, experienced arrhythmia ... I’m still healing from the cardiomyopathy In context ↗

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