Long COVID fatigue: barely left bed or house, better spells then relapsed
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Dec 2022
In their words
- Condition: Long COVID
It will be 2 years next month for me.
In context ↗ - At worst: Severe
Barely leave my house, lucky if I leave the bed.
In context ↗ - Now: Relapsed
Barely leave my house, lucky if I leave the bed. Every so often I will feel significantly better for a week or two but then relapse.
In context ↗ - Began after: COVID
It will be 2 years next month for me.
In context ↗
Read from 7 of their posts and comments; links to the 6 this page draws on
Summary
They were diagnosed in December 2020 and extreme fatigue came on at least six to eight months later; without their ADHD stimulant, at a higher dose, they could not get out of bed or stay awake. By late 2022 they barely left the house and were lucky if they left the bed, with better spells of a week or two followed by relapses. They used a wheelchair once for their longest shopping trip in two years and bought a $30ish under-desk mini bike.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- HIIT · Not said
I had a pretty strict HIIT and yoga routine. I’ve had to stop the HIIT
In context ↗ - yoga · Not said
really restrict myself with yoga (mainly just for stretching now)
In context ↗ - mini exercise bike · Helped
I DID just recently buy myself a $30ish mini exercise bike that is meant for under your desk and it’s able to help a bit
In context ↗ - dry mouth lozenges · Not said
I have to keep dry mouth lozenges on me at all times
In context ↗ - brushing lips with a toothbrush · Helped
if I brush my lips with a toothbrush daily, it helps sooo much with the dry lips
In context ↗ - stimulant · Helped
The doctor prescribed a higher dose of my stimulant that I was already on for adhd. If I don’t take that medication, I can’t get out of bed.
In context ↗ - wheelchair · Helped
I rode one around target a few months ago ... it helped me have my longest shopping trip in two years
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 7 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| December 2020 | ill with long COVID, diagnosedI was diagnosed in Dec 2020.In context ↗ | Not stated |
| 6-8 months after diagnosis | extreme fatigue began; cannot get out of bed without stimulantI believe the extreme fatigue did not come on for at least 6-8 months after I was initially diagnosed.In context ↗ | Severe |
| 2022-11-09 | barely leaves the house, often in bed, short better spells then relapseBarely leave my house, lucky if I leave the bed.In context ↗ | Severe |
| 2022-12-12 | still needs stimulant medication to stay awakeI can’t stay awake without them tho.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I don’t take the medication a few times a month and I will normally sleep aaalll day.
In context ↗