ME/CFS
No benefit
ME/CFS since childhood, still no improvement, doctor's care made health worse
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jul 2018
In their words
- Condition: ME/CFS
I’ve had ME since I was 9-10 years old.
In context ↗ - Now: No benefit
that was almost 5 years ago and I still haven’t recovered
In context ↗
Summary
Hill 39562 had ME since the age of 9 or 10 and had still not recovered by 2018. Before diagnosis everyone, themselves included, thought they were depressed, and they spent two to three months in a mental hospital with exhausting weekday activities they could not refuse. They said a decade of their doctor's care had made their health permanently worse. A contraceptive implant fitted in November 2017 was followed by daily bleeding from January 2018, and they planned to have it removed.
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What they tried
Their words about each treatment
- exhausting activities · Much worse
they had exhausting activities planned, and I couldn’t say no to any of them because it was part of my treatment ... made my health permanently worse
In context ↗ - birth control implant · Worse
Last year, in November, I got a birth control implant. ... I’ve now been bleeding every day since January 11th
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| age 9-10 | ME began in childhoodI’ve had ME since I was 9-10 years old.In context ↗ |
| almost 5 years before July 2018 | two to three months in a mental hospital with exhausting daily activitiesWas admitted to a mental hospital for 2-3 months, where every day, except on weekends, they had exhausting activities plannedIn context ↗ |
| 2018-07 | still had not recovered; daily bleeding after contraceptive implantthat was almost 5 years ago and I still haven’t recoveredIn context ↗ |
Adverse events
- Everyday exercise and activity“Was admitted to a mental hospital for 2-3 months, where every day, except on weekends, they had exhausting activities planned, and I couldn’t say no to any of them” In context ↗ Made symptoms worse
- Everyday exercise and activity“It’s hard not to be upset with my doctor for all the stuff she’s put me through over the past 10 years that made my health permanently worse” In context ↗ Made symptoms worse
- Progestin-only birth control (mini pill, implant or shot)“I’ve now been bleeding every day since January 11th.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
everyone (me included) just thought I was really, really depressed
In context ↗