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ME/CFS Outcome unclear

ME/CFS with hyperadrenic POTS; stimulants and compression leggings

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
May 2019
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A person with hyperadrenic POTS and orthostatic intolerance said small amounts of stimulants such as Adderall and Sudafed kept blood pressure steadier, prevented adrenaline surges, lowered heart rate, improved function and let their brain work for a bit; compression leggings were as important as stimulants to them. They said an Adderall prescription changed their life, though too much could cause a crash.

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What they tried

Their words about each treatment
  • Adderall · Helped a lotGetting an Adderall prescription changed my life. In context ↗
  • Sudafed · HelpedIf I take a small amount of Sudafed, Adderall, caffeine, etc. before I get woozy it keeps my blood pressure stable and I can prevent that adrenaline surge In context ↗
  • caffeine · HelpedIf I take a small amount of Sudafed, Adderall, caffeine, etc. before I get woozy it keeps my blood pressure stable In context ↗
  • Compression leggings · HelpedCompression leggings are easily as important as stimulants to me. In context ↗

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiamy orthostatic intolerance is caused by hyperadrenic POTS In context ↗

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