Long COVID
Severe → no benefitIll for 2 years
Gastroparesis after long COVID, half body weight lost, no benefit from diets or supplements
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- 2 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
After getting COVID, I was diagnosed with gastroparesis
In context ↗ - At worst: Severe
I have been on TPN for 2 years ... I literally cannot sleep and get extreme symptoms
In context ↗ - Now: No benefit
I have tried so many different elimination diets and have taken 1 million supplements and medication, but nothing has helped.
In context ↗ - Began after: COVID
After getting COVID, I was diagnosed with gastroparesis
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
After COVID they developed gastroparesis, lost half their body weight in a couple of months and could not tolerate food without severe nausea, sweating, flushing and fainting. An NJ tube failed to stop weight loss, so they went on TPN, which they had used for two years alongside trickle feeds and small oral intake. Elimination and low-FODMAP diets, supplements, IV vitamins and ozone, acupuncture and vagal exercises gave no benefit.
Ask Miruvor AI
What they tried
Also tried
ginger tea· Helped · wore offslippery Elm· Helped · wore offelimination diets· No changebutchers broom· No changeincreasing salt and fluid intake· No changeHCL and digestive enzymes· No changedigestive bitters· No changemeditation and deep breathing· No changevagal stimulation exercises, including using a tens machine· No changeacupuncture· No changechiropractic manipulation· No changebone broth· No changekefir· No changeoil of oregano· No changeanimal organ meats like brain and liver· No changecastor oil packs· No changeTPN· Not saidmegadosing vitamin C· Not saidvarious forms of thiamine· Not saidalpha liposuction acid· Not saidIV ozone therapy· Not saidcoffee enemas· Not saidgreen juices· Not saidvitamin D3· Not saidphosphatidylcholine· Not said
Their words about each treatment
- TPN · Not said
I have been on TPN for 2 years and I’m not sure what to do
In context ↗ - elimination diets · No change
I have tried so many different elimination diets ... but nothing has helped
In context ↗ - butchers broom · No change
I tried vasoconstrictors like butchers broom ... but this never helps with the autonomic symptoms
In context ↗ - increasing salt and fluid intake · No change
as well as increasing salt and fluid intake by consuming a lot of fluids through my tube, but this never helps with the autonomic symptoms
In context ↗ - HCL and digestive enzymes · No change
I tried taking HCL and digestive enzymes as well as digestive bitters, but those don’t work
In context ↗ - meditation and deep breathing · No change
I practice meditation and deep breathing ... but that doesn’t help either
In context ↗ - vagal stimulation exercises, including using a tens machine · No change
do vagal stimulation exercises, including using a tens machine, but that doesn’t help either
In context ↗ - megadosing vitamin C · Not said
I tried megadosing vitamin C
In context ↗ - various forms of thiamine · Not said
as well as various forms of thiamine and also alpha liposuction acid for nerve regeneration
In context ↗ - IV ozone therapy · Not said
I have tried IV ozone therapy as well
In context ↗ - acupuncture · No change
I have done acupuncture and chiropractic manipulation, but those have done nothing either
In context ↗ - bone broth · No change
I have tried consuming a lot of bone broth and kefir, but I haven’t noticed any difference
In context ↗ - oil of oregano · No change
I tried oil of oregano to see if there was an issue with the biosis, but that has not done anything
In context ↗ - coffee enemas · Not said
I tried coffee enemas
In context ↗ - green juices · Not said
I drank tons and tons of green juices
In context ↗ - animal organ meats like brain and liver · No change
I like to eat a lot of animal organ meats like brain and liver in order to get a dense concentration of compounds which can help heal the nervous system, but I have not noticed any difference
In context ↗ - ginger tea · Helped
Ginger tea used to help me, but it doesn’t work anymore
In context ↗ - slippery Elm · Helped
Ginger tea used to help me, but it doesn’t work anymore as well as slippery Elm.
In context ↗ - castor oil packs · No change
Castor oil packs never helped me either.
In context ↗ - vitamin D3 · Not said
I currently take vitamin D3 and a lot of phosphatidylcholine every day.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | COVID followed by gastroparesisAfter getting COVID, I was diagnosed with gastroparesisIn context ↗ | Not stated |
| a couple months after onset | lost half body weight and could not tolerate foodI had lost half my body weight out of the blue within a couple monthsIn context ↗ | Severe |
| 2026-10-27 | still on TPN after two years, nothing has helpedI have been on TPN for 2 years and I’m not sure what to doIn context ↗ | Severe |
Adverse events
- Tube feeding (NG, NJ, PEG, TPN)“I could never tolerate it at an adequate rate to prevent weight loss” In context ↗ Side effects
- Tube feeding (NG, NJ, PEG, TPN)“My body cannot tolerate even moderate infusion rates of sugar without getting crazy reactive hypoglycemia symptoms” In context ↗ Side effects
- Tube feeding (NG, NJ, PEG, TPN)“aggravating my dysautonomia” In context ↗ Made symptoms worse
- Tube feeding (NG, NJ, PEG, TPN)“trying to do overnight feeds or infusions has become impossible because I literally cannot sleep and get extreme symptoms” In context ↗ Insomnia from treatment
Symptoms mentioned
Their words about their symptoms
- Gut problems
slowly losing the ability to operate any food without severe nausea
In context ↗ - POTS & dysautonomia
aggravating my dysautonomia
In context ↗ - Mast cell (MCAS) & allergies
extreme sweating and flushing
In context ↗ - Sleep problems
i literally cannot sleep
In context ↗