Severe ME/CFS, somewhat better after mind-body and nervous-system work
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Aug 2026
In their words
- Now: Somewhat better
I've been actively pursuing mind body methods for the past few years, and in time I've gone from solidly severe to the mild end of severe. Still very disabled by the average person's standards, but I can do things now that were unimaginable a few years ago.
In context ↗
Summary
Trail 57552 takes ivabradine for POTS, without which their heart would race too much. After several years of mind-body and nervous-system work they have gone from solidly severe to the mild end of severe, still very disabled but able to do things that were unimaginable a few years ago.
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What they tried
What they credit
Also tried
Their words about each treatment
- ivabradine · Helped
I take ivabradine for mine, and whilst it’s still debilitating, it does at least allow me to masturbate
In context ↗ - mind body methods · Helped
I've been actively pursuing mind body methods for the past few years, and in time I've gone from solidly severe to the mild end of severe.
In context ↗
Approaches: Brain retraining
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
Did you mean to say POTS there? I take ivabradine for mine
In context ↗ - Anxiety & low mood
my anxiety about this has just rekindled today after a while of letting it slip to the back of my mind
In context ↗
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