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Long COVID No benefitIll for 18 months

Long COVID with POTS and shingles for over a year, still ill after a recent POTS flare

Condition
Long COVID
At worst
Not stated
Ill for
18 months
Last post
Feb 2024
In their words
  • Condition: Long COVIDhaving HORRIBLE long hauler symptoms for over a year including shingles In context ↗
  • Now: No benefitCovid 100% made my existing POTs incredibly worse and still facing it. In context ↗
  • Began after: COVIDprior to contracting the Vid and having HORRIBLE long hauler symptoms for over a year
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A woman with pre-existing POTS caught COVID and had horrible long-hauler symptoms for over a year, including shingles; COVID made her POTS much worse. She was diagnosed but offered only a beta blocker for her heart rate, and NAC exacerbated everything. She had no flares from October 2022, before her pregnancy, until a recent POTS flare with vertigo and dizziness in early 2024, when she was still ill and caring for a baby.

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What they tried

Their words about each treatment
  • beta blocker · Not saidnot any official treatment other than a beta blocker to help heart rate In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
onsetCOVID infection followed by long-hauler symptoms for over a year, including shinglesprior to contracting the Vid and having HORRIBLE long hauler symptoms for over a year including shingles In context ↗
2024-02POTS flare with vertigo and dizziness, first since before pregnancyRecent flare with POTs currently as well as vertigo and everything else that come along with it In context ↗
2024-02-08still flaring, dizzy spells while caring for a 6-month-oldDizzy spells are what gets me and difficult to be the best mom I can when I feel like I’m seasick standing still In context ↗

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaRecent flare with POTs currently as well as vertigo In context ↗
  • Heart symptoms & palpitationsa beta blocker to help heart rate In context ↗

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