ME/CFS
Very severe → much better
Bedbound for years with ME/CFS, now teetering between mild and moderate
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- Not stated
- Last post
- Aug 2026
In their words
- At worst: Very severe
I had spent years being completely bedbound, and months being extremely severe
In context ↗ - Now: Much better
I’m teetering on mild but moderate. ... I’ve had improvements
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Beacon 84596 has ME/CFS and spent years completely bedbound, including months of being extremely severe. They say they have improved since then and now describe themselves as teetering between mild and moderate, with hope of stabilising a bit more over the next few years. No treatments or illness triggers are named. They would like top surgery eventually but would not consider it while any worse.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | bedbound for years, months extremely severeI had spent years being completely bedbound, and months being extremely severeIn context ↗ | Very severe |
| 2026-08-06 | improved to mild-moderateI’m teetering on mild but moderate.In context ↗ | Moderate |