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ME/CFS No benefit

ME/CFS with 10+ hours' sleep a night, no better after pacing and other approaches

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Jun 2014
In their words
  • Condition: ME/CFSI used to sleep 10+ hours and 1 hour during the day. When I started with pacing I slowly needed less sleep. In context ↗
  • Now: No benefitOnly i didnt got better. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A person with ME/CFS who slept more than 10 hours a night plus an hour during the day. Starting pacing gradually reduced their sleep need to 8 hours a night. They tried other unnamed approaches whose practitioners promised a quick recovery, but say they did not get better, and warned others to be careful of such promises and of feeling depressed when recovery doesn't happen.

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What they tried

Also tried

Their words about each treatment
  • pacing · HelpedWhen I started with pacing I slowly needed less sleep. Now I sleep 8 hours. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
—onset of ME/CFS (date not given)I used to sleep 10+ hours and 1 hour during the day. In context ↗
2014-05-22sleep need fell from 10+ hours plus a nap to 8 hoursWhen I started with pacing I slowly needed less sleep. Now I sleep 8 hours. In context ↗Pacing and the energy envelope
2014-06-29other unnamed approaches did not help; still not betterOnly i didnt got better. In context ↗

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