ME/CFS for 20 years, now in a severe crash after pushing too hard
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 20 years
- Last post
- Oct 2023
In their words
- Condition: ME/CFS
20 years of steady improvement to moderate/mild now in a big crash for 8 weeks
In context ↗ - At worst: Severe
I'm in a big crash now for 3 months from mild/moderate to severe
In context ↗ - Now: No benefit
I'm in a big crash now for 3 months from mild/moderate to severe and I'm having the same issue, every time I feel better from pacing aggressively I do too much and it kicks me down again for another 10 days
In context ↗
Summary
A Reddit user with ME/CFS for about 20 years described a steady improvement to mild or moderate before a major setback in 2023. After pushing too hard for months and a supermarket trip, they were eight weeks into a fluctuating crash, and by October 2023 had been in a big crash for three months, going from mild/moderate to severe, with repeated ten-day crashes after doing too much.
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What they tried
Also tried
Their words about each treatment
- pacing aggressively · Helped
every time I feel better from pacing aggressively I do too much and it kicks me down again for another 10 days.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 20 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about 2003 | ME/CFS onset20 years of steady improvement to moderate/mildIn context ↗ | Not stated |
| by 2023 | steady improvement to moderate/mild20 years of steady improvement to moderate/mild nowIn context ↗ | Mild |
| 2023-09-04 | big crash after overexertion and supermarket trip, 8 weeks innow in a big crash for 8 weeks with symptoms fluctuating a lotIn context ↗ | Severe |
| 2023-10-12 | still in crash at 3 months, now severe; repeated 10-day crashes after overdoing itI'm in a big crash now for 3 months from mild/moderate to severeIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
every time I feel better from pacing aggressively I do too much and it kicks me down again for another 10 days
In context ↗