ME/CFS
Very severe → somewhat better
Bedbound with ME/CFS for two years, now homebound
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2023
In their words
- Condition: ME/CFS
I have moderate/severe ME
In context ↗ - At worst: Very severe
was completely bedbound for 2 years
In context ↗ - Now: Somewhat better
I have moderate/severe ME and live alone. I caught covid which almost killed me and was completely bedbound for 2 years.
In context ↗ - Began after: COVID
I caught covid which almost killed me
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Someone with moderate to severe ME who caught COVID, which almost killed them, and was completely bedbound for two years. By September 2023 they were homebound and living alone, cut off from family and friends, and said they had tried most treatments discussed online to no avail. They described the loneliness as worse than the ME and said they were prepared to end things if they could not avoid homelessness.
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What they tried
Also tried
treatments discussed on here· No changeaccepting and practicing gratitude· No change
Their words about each treatment
- treatments discussed on here · No change
I’ve tried most of the treatments discussed on here, to no avail.
In context ↗ - accepting and practicing gratitude · No change
I tried to accept and practice gratitude, it felt like I was only suppressing the truth.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | caught COVID, which almost killed themI caught covid which almost killed meIn context ↗ | Not stated |
| — | completely bedbound for two yearswas completely bedbound for 2 yearsIn context ↗ | Very severe |
| 2023-09-26 | homebound, living alone, isolated from family and friendsI have moderate/severe ME and live alone.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
I will try to work to avoid homelessness but am prepared to end things if I fail.
In context ↗