Non-functional with long COVID, now much better with calming exercises and carnivore diet
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Jun 2025
In their words
- Condition: Long COVID
How long are you LH for. I'm in 6 month post Covid.
In context ↗ - At worst: Severe
completely non functional for about 4 months
In context ↗ - Now: Much better
I'm in the 60s, still a ways to go
In context ↗ - Began after: a vaccination
My main symptom is migraine chronic daily post vaccine April 2021
In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
They developed chronic daily migraine after a COVID vaccine in April 2021 and improved about ten months later, until a COVID infection in May 2022 left them completely non-functional for roughly four months. By late 2022 they felt about halfway back and in March 2023 rated themselves in the 60s, still with a way to go. Calming exercises and a carnivore diet helped; they weighed maraviroc and statins against treating Babesia.
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What they tried
What they credit
Also tried
Their words about each treatment
- botox · Not said
I ended up on botox and neurotryptlan
In context ↗ - exercises learned from a functional neurologist on calming brain out of fight or flight · Helped
I did a bunch of exercises I learned from a functional neurologist on calming brain out of fight or flight. Helpful
In context ↗ - Carnivore · Helped
Carnivore helps stabilize
In context ↗
Approaches: Brain retraining · Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 13 months after onset: the story doesn’t say how ill they were before that. 4 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| April 2021 | chronic daily migraine began after COVID vaccineMy main symptom is migraine chronic daily post vaccine April 2021In context ↗ | Not stated |
| March 2022 | began to improve about ten months inI started to get better about ten months in in march 2022In context ↗ | Not stated |
| May 2022 | COVID infection pushed recovery far backthen got covid in May 2022, and WHAM, I was pushed so far back in my recover it was exponentially worseIn context ↗ | Severe |
| November 2022 | regained a bit of function, about half way backnowhere near normal yet. I also say like half way when askedIn context ↗ | Moderate |
| March 2023 | rated self in the 60sI'm in the 60s, still a ways to goIn context ↗ | Mild |
| July 2023 | calming exercises from a functional neurologist helpedI did a bunch of exercises I learned from a functional neurologist on calming brain out of fight or flight. Helpful bc you can do them all dayIn context ↗ | Not stated |
| June 2025 | carnivore diet helps stabiliseCarnivore helps stabilizeIn context ↗ | Not stated |
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
My main symptom is migraine chronic daily post vaccine April 2021
In context ↗ - POTS & dysautonomia
Today dizzy really for the first time
In context ↗ - Post-exertional malaise
I did a little more this past weekend...but then it goes back some
In context ↗
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