Long COVID
Severe → somewhat better
Mostly bedbound with long COVID, a little better after flu shot but still very disabled
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Nov 2025
In their words
- Condition: Long COVID
I got Covid and long Covid before vaccines were available
In context ↗ - At worst: Severe
I’m already completely disabled mostly bedbound - walking to the bathroom basically
In context ↗ - Now: Somewhat better
right now, I feel better than typical, still very disabled and limited, but slightly less fatigue, tolerating a little bit more standing.
In context ↗ - Began after: COVID
I got Covid and long Covid before vaccines were available
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user with long COVID since before vaccines were available is completely disabled and mostly bedbound, able to walk only to the bathroom. Yearly COVID boosters brought flares of POTS symptoms and fatigue lasting over six weeks, so this year's booster was skipped. Two weeks after the 2025 flu shot they felt slightly better than usual, with less fatigue, but remained very disabled.
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What they tried
Their words about each treatment
- Covid vaccine/booster · Worse
afterwards all my symptoms have been flaring pretty bad for 6+ weeks afterwards
In context ↗ - Methotrexate · Worse
I was on methotrexate the first half of the year, but didn’t tolerate it well (side effects)
In context ↗ - Imuran · Not said
i’m hoping this isn’t the calm before the storm and it’s just the imuran finally working, etc…
In context ↗ - flu shot · Not said
I think I did have additional fatigue for several days which I expected ... right now, I feel better than typical, still very disabled and limited, but slightly less fatigue
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | long COVID before vaccines were availableI got Covid and long Covid before vaccines were availableIn context ↗ | Severe |
| — | completely disabled, mostly bedboundI’m already completely disabled mostly bedbound - walking to the bathroom basicallyIn context ↗ | Severe |
| — | 6+ week flare after COVID vaccine/boosterafterwards all my symptoms have been flaring pretty bad for 6+ weeks afterwardsIn context ↗ | Severe |
| 2025-11-17 | slightly better than typical two weeks after flu shotright now, I feel better than typical, still very disabled and limited, but slightly less fatigue, tolerating a little bit more standingIn context ↗ | Severe |
Adverse events
- Flu vaccine“I think I did have additional fatigue for several days which I expected” In context ↗ Side effects
- COVID vaccination as treatment“afterwards all my symptoms have been flaring pretty bad for 6+ weeks afterwards ... the ones that flared up longer term where my pot symptoms, fatigue, probably inflammation” In context ↗ Made symptoms worse
- Methotrexate“I was on methotrexate the first half of the year, but didn’t tolerate it well (side effects)” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
my pot symptoms
In context ↗