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ME/CFS Much betterIll 5 years before improving or writing

ME/CFS once fairly debilitating, much better after cutting phone use with Focus Friend app

Condition
ME/CFS
At worst
Not stated
Ill before improving or writing
5 years
Last post
Apr 2026
In their words
  • Condition: ME/CFSI’ve had chronic fatigue for 5 years now. In context ↗
  • Now: Much betterIt used to be fairly debilitating, but now I’m able to live an almost normal college life. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A Reddit user who had chronic fatigue for five years described the illness as once fairly debilitating, then improved enough to live an almost normal college life. By April 2026 they still felt exhausted every day, could barely attend morning classes and avoided clubs for fear of overdoing it. Sleeping earlier and naps did not help. They used the Focus Friend app to cut phone use, which they said helped a lot.

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What they tried

Also tried

Their words about each treatment
  • Drinking 100 ounces of water a day · No changeI drink 100 ounces of water a day just so doctors would stop telling me to drink more water, and surprise, I’m not better. In context ↗
  • Focus Friend · Helpedusing Focus Friend (made by Hank Green) has helped me a ton In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y4 y5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2021onset of chronic fatigue, then fairly debilitatingI’ve had chronic fatigue for 5 years now. It used to be fairly debilitating In context ↗Moderate
2026-04-19almost normal college life, but exhausted every day and skipping clubs to avoid overdoing itnow I’m able to live an almost normal college life ... I’m exhausted every day, from the moment I wake up to the moment I go to sleep In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsSleeping earlier doesn’t help. Naps don’t help. In context ↗

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