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ME/CFS Mild → no benefit

ME/CFS: restricted allergy diet left them barely able to get out of bed, no improvement

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
Mar 2012
In their words
  • Condition: ME/CFSr/cfs ... I was still really exhausted In context ↗
  • At worst: MildI am a very busy college student ... I was still really exhausted In context ↗
  • Now: No benefitAlthough, when I stopped eating all the foods I was allergic to I was still really exhausted. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A college student who in 2012 reported allergies to wheat, oat, rye, corn, dairy, eggs, tree nuts, legumes, melon and shellfish. Cutting out all those foods left them about 12 pounds lighter in two weeks and so weak they could barely get out of bed, and their exhaustion persisted on the restricted diet. They said they still needed to work on the diet but had no time at the moment as a busy college student.

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What they tried

Their words about each treatment
  • cutting all of this out · WorseIt lead to me not eating much and I lost about 12 pounds in 2 weeks and I could barely get out of bed I was so weak In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
—onset of ME/CFS, undated; ongoing exhaustionwhen I stopped eating all the foods I was allergic to I was still really exhausted In context ↗Not stated
before 2012cut out every food they were allergic to at once and became too weak to get out of bedI lost about 12 pounds in 2 weeks and I could barely get out of bed I was so weak In context ↗SevereElimination diets (other)
2012-03-08busy college student, still exhausted, no time for an elimination dietI am a very busy college student who does not have time to spend an hour cooking/eating each meal In context ↗Mild

Adverse events

  • Elimination diets (other)“It lead to me not eating much and I lost about 12 pounds in 2 weeks and I could barely get out of bed I was so weak.” In context ↗ Refeeding or deficiency problems

Symptoms mentioned

Their words about their symptoms
  • Mast cell (MCAS) & allergiesI'm allergic to wheat, oat, rye, corn, dairy, eggs, all tree nuts, legumes, melon, shellfish In context ↗
  • Muscle weaknessI could barely get out of bed I was so weak In context ↗

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Asking aboutOwl 59199’s story

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