Housebound with long COVID over a year, now nearly back to normal with therapy and support
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Nov 2022
In their words
- Condition: Long COVID
Took me over a year and a half to realize it was long COVID.
In context ↗ - At worst: Moderate
I was housebound for over a year.
In context ↗ - Now: Near normal
I’m at like 95 percent recovered I’d say.
In context ↗ - Began after: COVID
Took me over a year and a half to realize it was long COVID.
In context ↗
Read from 9 of their posts and comments; links to the 5 this page draws on
Summary
Fell ill with long COVID at 24 and was housebound for over a year, unable to work and exhausted by a half-mile walk; worst symptoms were severe fatigue, muscle weakness and temperature deregulation, and they attempted suicide. Over six months they regained function, moved back to New York City and took a demanding bar job. They reported about 95% recovered with manageable anxiety, crediting emotional support and therapy; they had no treatment plan.
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What they tried
What they credit
Also tried
Their words about each treatment
- weekly therapy in-person · Helped
starting weekly therapy in-person and getting out of my house has been amazing
In context ↗ - Validation and emotional support (community) · Helped a lot
Validation and emotional support are the main things that helped me get better.
In context ↗ - walking · Not said
But have started walking. Walked 5 miles the other day!
In context ↗
Approaches: CBT & mindset
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | fell ill with long COVIDGot sick when I was 24. I was really hopeless for over a year, closer to two.In context ↗ | Not stated |
| 2021 | housebound for over a year, unable to work, suicide attemptI was housebound for over a year. ... I was exhausted walking half a mile. | Moderate |
| 2022-05 | gained function and started walking, still not workingStill haven’t been able to work and largely housebound. But have started walking. Walked 5 miles the other day!In context ↗ | Moderate |
| 2022-11 | back in New York working a demanding bar job, about 95% recoveredI’m at like 95 percent recovered I’d say.In context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
Sever fatigue, muscle weakness, temperature deregulation. Those were the worst ones.
In context ↗ - Anxiety & low mood
Now my main symptoms are anxiety and muscle tension/fatigue.
In context ↗
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