Long COVID
Moderate → no benefit
Long COVID: ill all day, too weak to hold an E bike, baseline unchanged
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Sep 2026
In their words
- Condition: Long COVID
I have no friends where I live not a soul. But nobody has gotten sick long-term like this
In context ↗ - At worst: Moderate
I can barely keep my E bike standing upright ... I still feel like shit all day every day and weaker than I think
In context ↗ - Now: No benefit
being off all the meds I feel better but I also feel worse at the same time so it’s almost like my baseline has not changed
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user in a long-COVID community feels ill all day every day and too weak to hold an E bike upright, with bursts of energy that run longer than five hours followed by crashes and sleeping up to 20 hours. They are not working and, after a rheumatologist workup leaning toward lupus or psoriatic arthritis, are off all medication; they say their baseline has not changed. They also have EDS.
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What they tried
Also tried
all my medications (unspecified)· Not said
Their words about each treatment
- all my medications (unspecified) · Not said
being off all the meds I feel better but I also feel worse at the same time
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | chronically ill, not working, energy bursts followed by crashesI have my five hour burst of energy which I don’t want exaggerate. They do run a lot longer than five hours, but he then also sees the crashIn context ↗ | Moderate |
| 2026-09-27 | off all medication, baseline unchanged, still weak all daybeing off all the meds I feel better but I also feel worse at the same time so it’s almost like my baseline has not changed. I still feel like shit all day every day and weaker than I thinkIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I have my five hour burst of energy which I don’t want exaggerate. They do run a lot longer than five hours, but he then also sees the crash
In context ↗ - Sleep problems
the inability to wake me after I’ve already been sleeping for 20 hours
In context ↗ - Muscle weakness
I can barely keep my E bike standing upright and that’s like with me standing straddling it that should be easy. But nope, it’ll knock me right down to the ground
In context ↗