ME/CFS, bedbound four months, improved slowly then relapsed mostly bedbound
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2.5 years
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
I’ve had ME/CFS for about 2 and a half years now.
In context ↗ - At worst: Severe
was bedbound for 4 months before very very slowly improving to do basic tasks like going to the toilet
In context ↗ - Now: Relapsed
improved and have recently relapsed back into not entirely bedbound, but mostly.
In context ↗
Summary
Ridge 31233 had ME/CFS for about two and a half years, becoming intolerant to caffeine and bedbound for four months from November 2024, losing their job. They improved very slowly to manage basic tasks and spent two months homeless in a council hotel. By August 2026 they had relapsed to mostly bedbound and could not sleep in their bed. They credited no treatment, only wishing they had paced earlier.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 9 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| approximately February 2024 | ME/CFS onsetI’ve had ME/CFS for about 2 and a half years now.In context ↗ | Not stated |
| November 2024 | bedbound for four months, lost jobI got sacked from my job in Nov 2024 because of how sick I was, and was bedbound for 4 monthsIn context ↗ | Severe |
| around March 2025 | very slow improvement, able to do basic tasksbefore very very slowly improving to do basic tasks like going to the toiletIn context ↗ | Severe |
| August 2026 | relapsed to mostly bedboundimproved and have recently relapsed back into not entirely bedbound, but mostlyIn context ↗ | Severe |
| August 2026 | mostly bedbound, cannot sleep in their bedSpent 6 months bed bound initially, improved and have recently relapsedIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Gut problems
Even caffeine in tea would give me awful stomach pain and diarrhoea.
In context ↗ - Sleep problems
I just cannot sleep in my bed anymore.
In context ↗ - Post-exertional malaise
it’s what I did for months till it eventually left me bedbound
In context ↗