Bedbound with ME/CFS, now much better after ANS Rewire
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 5 years
- Last post
- Jan 2020
In their words
- Condition: ME/CFS
I've had CFS since mid 2014
In context ↗ - At worst: Severe
I have been in very low places with CFS (bedbound, dropping out of university, leaving my job, moving back in with parents etc)
In context ↗ - Now: Much better
I did a recovery program called ANS Rewire which helped me get from about 50% to maybe 75% functioning
In context ↗
Summary
They had CFS from mid-2014 and were bedbound, dropped out of university and left their job. They credit the ANS Rewire programme with lifting them from about 50% to 75% functioning, then threw themselves back into life. By late 2019 they had worked part-time at an art gallery for a year, finished their degree, run up to 3.5 km and taken holidays, though they were by no means fully recovered. The course cost around $300.
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What they tried
What they credit
Their words about each treatment
- ANS Rewire · Helped
I did a recovery program called ANS Rewire which helped me get from about 50% to maybe 75% functioning.
In context ↗ - throwing myself at life · Helped
I've just tried to throw myself at life as much as I can ... gave me lots of confidence which I would say is the most helpful thing
In context ↗
Approaches: Brain retraining
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| mid 2014 | onset of CFSI've had CFS since mid 2014In context ↗ | Not stated | |
| — | bedbound, dropped out of university, left their job, moved back in with parentsbedbound, dropping out of university, leaving my job, moving back in with parentsIn context ↗ | Severe | |
| 2020-01-05 | after the ANS Rewire course: part-time work, running, finished degree, holidayshelped me get from about 50% to maybe 75% functioningIn context ↗ | Mild | Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust) |
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