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ME/CFS Moderate → no benefit

Moderate ME/CFS and POTS, no improvement after exercise

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Jan 2026
In their words
  • Condition: ME/CFShe knows that i suffer from chronic fatigue syndrome (moderate). In context ↗
  • At worst: Moderatehe knows that i suffer from chronic fatigue syndrome (moderate). In context ↗
  • Now: No benefitit only made things worse in the end. In context ↗
Read from 3 of their posts and comments; links to the 2 this page draws on

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Summary

A person with moderate ME/CFS and POTS stays within their energy envelope, counting errands, laundry, cleaning, showering and gentle stretching in bed as activity, and says gradual aerobic exercise is something their body cannot tolerate. At a very mild stage of ME, when only POTS was known, they worked out fairly often and it only made things worse. They report no luck with exercise.

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What they tried

Their words about each treatment
  • worked out fairly often · Worsei worked out fairly often. it only made things worse in the end In context ↗
  • gentle stretching or yoga in bed · Not saidgentle stretching or yoga in bed In context ↗
  • moving within my energy envelope · Not saidi try to move as much as i can within my energy envelope In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—at a very mild stage of ME, knowing only about POTSwhen i was at the very mild stage of ME (and only knew about my POTS) In context ↗Mild
—exercising fairly often made ME worsei worked out fairly often. it only made things worse in the end In context ↗Not stated
2026-01-28moderate ME/CFS and POTS, moving within energy envelopehe knows that i suffer from chronic fatigue syndrome (moderate) In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiahe is treating me for my POTS In context ↗
  • Post-exertional malaisegradual aerobic exercise, which is something my body cannot tolerate In context ↗

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