Moderate ME/CFS and POTS, no improvement after exercise
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jan 2026
In their words
- Condition: ME/CFS
he knows that i suffer from chronic fatigue syndrome (moderate).
In context ↗ - At worst: Moderate
he knows that i suffer from chronic fatigue syndrome (moderate).
In context ↗ - Now: No benefit
it only made things worse in the end.
In context ↗
Summary
A person with moderate ME/CFS and POTS stays within their energy envelope, counting errands, laundry, cleaning, showering and gentle stretching in bed as activity, and says gradual aerobic exercise is something their body cannot tolerate. At a very mild stage of ME, when only POTS was known, they worked out fairly often and it only made things worse. They report no luck with exercise.
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What they tried
Also tried
Their words about each treatment
- worked out fairly often · Worse
i worked out fairly often. it only made things worse in the end
In context ↗ - gentle stretching or yoga in bed · Not said
gentle stretching or yoga in bed
In context ↗ - moving within my energy envelope · Not said
i try to move as much as i can within my energy envelope
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | at a very mild stage of ME, knowing only about POTSwhen i was at the very mild stage of ME (and only knew about my POTS)In context ↗ | Mild |
| — | exercising fairly often made ME worsei worked out fairly often. it only made things worse in the endIn context ↗ | Not stated |
| 2026-01-28 | moderate ME/CFS and POTS, moving within energy envelopehe knows that i suffer from chronic fatigue syndrome (moderate)In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
he is treating me for my POTS
In context ↗ - Post-exertional malaise
gradual aerobic exercise, which is something my body cannot tolerate
In context ↗