Housebound with ME/CFS, now out a few days a week after a video creator's advice
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Sep 2019
In their words
- Condition: ME/CFS
think I have a different type of ME/CFS than he had.
In context ↗ - At worst: Moderate
It helped get me from housebound to able to go out a few days a week.
In context ↗ - Now: Somewhat better
It helped get me from housebound to able to go out a few days a week. ... I didn’t recover like he did.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Followed a video creator's videos and advice for a year or two, which took them from housebound to able to go out a few days a week, but not to full recovery. They then gave up resting all the time and went back on supplements, thinking their ME/CFS differs from the creator's, and reported gastroparesis-like symptoms that made eating hard.
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What they tried
What they credit
Also tried
Their words about each treatment
- his videos and advice · Helped
I followed his videos and advice for a year or two. It helped get me from housebound to able to go out a few days a week.
In context ↗ - supplements · Not said
Now I’m back on supplements
In context ↗
Approaches: Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | onset of ME/CFSthink I have a different type of ME/CFS than he hadIn context ↗ | Not stated | |
| — | houseboundIt helped get me from houseboundIn context ↗ | Moderate | |
| — | able to go out a few days a week after following rest-and-avoid-stress advice for a year or twoIt helped get me from housebound to able to go out a few days a week.In context ↗ | Mild | Radical rest |
| 2019-09-01 | stopped resting all the time, back on supplements, not fully recoveredNow I’m back on supplements, not resting all the time etc. I just got sick of itIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Gut problems
I have gastroparesis-like symptoms and struggle to eat normal amounts
In context ↗
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