Long COVID since 2020, still pacing, no improvement after two vaccine doses
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- 22 months
- Last post
- Jan 2022
In their words
- Condition: Long COVID
not 100% I'm a long hauler as I didn't get a chance to get tested, but I got all the common symptoms after a cold just when the pandemic started
In context ↗ - At worst: Mild
I still can do relatively a lot, but now trying to be more careful and force myself to pace more
In context ↗ - Now: No benefit
Still struggling with the symptoms. I had both doses of the vaccine and my symptoms have neither improved nor worsened.
In context ↗ - Began after: another virus
I got all the common symptoms after a cold just when the pandemic started
In context ↗
Summary
Dates their illness to a cold at the start of the pandemic in 2020, with long-COVID-like symptoms still present in late 2021 and no test to confirm it. They had both vaccine doses without symptoms improving or worsening. They could still do relatively a lot but were pacing more to conserve energy, and long-standing insomnia had eased somewhat by January 2022, with five to seven hours of sleep using sleep aids.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- the vaccine · No change
I had both doses of the vaccine and my symptoms have neither improved nor worsened.
In context ↗ - pace more · Helped
force myself to pace more bc I do feel that it helps me to have a bit more energy in a long run
In context ↗ - Nyquil or something similar · Not said
I sleep between 5-7 hours (usually take Nyquil or something similar)
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 19 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | cold at the start of the pandemic, followed by long-COVID-like symptomsI got all the common symptoms after a cold just when the pandemic startedIn context ↗ | Not stated | |
| 2021-10-28 | still struggling with symptoms; vaccine changed nothingStill struggling with the symptoms. I had both doses of the vaccine and my symptoms have neither improved nor worsenedIn context ↗ | Mild | |
| 2021-11-21 | pacing more to have more energy in the long runI still can do relatively a lot, but now trying to be more careful and force myself to pace moreIn context ↗ | Mild | Pacing and the energy envelope |
| 2022-01-19 | long-standing insomnia somewhat better, sleeping 5-7 hoursI've had insomnia for a long time. Atm it's somewhat better and I sleep between 5-7 hoursIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I've had insomnia for a long time.
In context ↗