ME/CFS
Moderate → no benefitIll for 5 years
ME/CFS nearly housebound and unable to converse, cane tried, no overall benefit
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 5 years
- Last post
- Apr 2022
In their words
- Condition: ME/CFS
I have been diagnosed with CFS from the age of 16 and I'm now 21.
In context ↗ - At worst: Moderate
my CFS has gotten to the point where i'm nearly house bound
In context ↗ - Now: No benefit
my CFS has gotten to the point where i'm nearly house bound ... my condition getting worse super fast and for seemingly no reason
In context ↗
Read from 2 of their posts and comments; links to the one this page draws on
Summary
Diagnosed with CFS at 16 and now 21, her CFS was more manageable at school with a predictable energy envelope but has worsened to nearly housebound, unable to hold a proper conversation and getting exhausted holding up a phone, crashing for weeks after outings of under 20 minutes. A cheap cane helps her balance and fatigue, but after being glared and shouted at in public she has not left the house and feels a fraud for using it.
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What they tried
Also tried
Their words about each treatment
- cane · Helped
I recently bought a cheap cane from Amazon, and it worked really well and did the trick. ... My cane helps with both balance and fatigue
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 16 | diagnosed with CFS at 16; energy envelope predictable and illness more manageable at school and collegeI have been diagnosed with CFS from the age of 16 and I'm now 21. With support from school and college, I have a good education. This being said, my CFS was a lot more manageable back then and my energy envelop was very predictable.In context ↗ | Mild |
| 2022-04-23 | CFS worsened fast with no clear reason; nearly housebound and studying at universityNow I'm studying at university (and planning to drop out) and my CFS has gotten to the point where i'm nearly house bound.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
when I go out without it, I can crash for weeks afterwards, even if the outing was less that 20 minutes.
In context ↗ - Anxiety & low mood
my anxiety about the cane was about hypothetical situations that wouldn't happen
In context ↗