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Long COVID Moderate → somewhat betterIll 14 months before improving or writing

Long COVID with dizziness and nausea, one outing a week, now two after rest and pacing

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
14 months
Last post
Feb 2024
In their words
  • Condition: Long COVIDI lost my job due to long covid In context ↗
  • At worst: ModerateApproximately once a week I have an outing, but have recently upped it to 2 as my stamina increases. In context ↗
  • Now: Somewhat betterI have developed a pretty good routine that has had me steadily improving, if slow In context ↗
  • Began after: COVIDI got my first covid infection in Dec 2022, and did not have another infection again after that. In context ↗
Read from 4 of their posts and comments; links to the 3 this page draws on

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Summary

A Reddit user caught COVID in December 2022 and was well for about a year, then a non-COVID bug in late November 2023 flared their symptoms badly enough that they lost their job. They reported dizziness, loss of consciousness, tunnel vision and constant nausea, and managed about one outing a week. Rest, hydration, compression and a paced morning routine brought slow, steady improvement; by February 2024 they were up to two outings a week.

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Asking aboutDune 94182’s story

What they tried

Also tried

weed· Helpedmuscle rubs/joint creams· Helpedmassage· Helpedslew of meds· Not said
Their words about each treatment
  • rest · HelpedREST. First and foremost: rest. Rest is how your body heals. In context ↗
  • water · HelpedI aim to drink 100+oz of water a day, based on what my doctor recommended ... starting immediately with that 20oz makes things easier In context ↗
  • compression socks and leggings · Helpedcompression socks 24/7. Get a looser set for night (I like ProCompression crew socks) and tighter for the day In context ↗
  • hydration drink with Liquid IV · Helpedmake a 32oz hydration drink (add 1 dose of liquid IV stuff to 32oz of water) In context ↗
  • salty snacks · Helpedsalty snacks are doctor prescribed!! In context ↗
  • avoiding fried foods, alcohol and caffeine · Helpedavoid fried foods, alcohol, and caffeine - all make my symptoms worse In context ↗
  • weed · Helpedusually smoke a bit of weed because it helps with my constant nausea/motion sickness since this all began (legal where I live) In context ↗
  • muscle rubs/joint creams · Helpedmuscle rubs/joint creams. There are so many options, but ingredients to look for: menthol, CBD, arnica. I have some brands I absolutely swear by In context ↗
  • massage · Helpedmassage is better than stretching. Have some tightness? Massage it, then give a stretch In context ↗
  • slew of meds · Not saidtake slew of meds In context ↗

Approaches: POTS medication · Diet · Radical rest

Their path

Very severeSevereModerateMildNear normalRecovered11 mo14 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 11 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
Dec 2022first COVID infectionI got my first covid infection in Dec 2022, and did not have another infection again after that. In context ↗Not stated
late Nov 2023non-COVID bug brought symptoms back; too ill to workI caught some other bug going around in late Nov 2023 and it caused all these symptoms to flare up bad enough that I can no longer work. In context ↗Moderate
2024-02-15slow steady improvement on a rest, hydration and compression routine; outings up to twice a weekI have developed a pretty good routine that has had me steadily improving, if slow In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaI don't feel comfortable driving until I can do things like check my blind spots without having tunnel vision and heaving in case I lose consciousness again. In context ↗
  • Vision problemscheck my blind spots without having tunnel vision In context ↗
  • Gut problemsit helps with my constant nausea/motion sickness since this all began In context ↗

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