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ME/CFS Outcome unclear

CFS as a student, isolated at home, trying pacing and vitamin D

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
Jan 2025
In their words
  • Condition: ME/CFSI’ve had the same thing happen to me. In context ↗
  • At worst: MildI found that online school was better fit for me ... I’m so isolated at home while dealing with this and other conditions In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Nightjar 60430 described having CFS as a student, finding online school a better fit and using pacing; they would do well for a week then go downhill completely. Unhealthy food for a day or so brought stomach aches, nausea and more fatigue, and a vitamin D supplement changed how they felt. They remained isolated at home while dealing with CFS and other conditions, though they preferred short outings like a movie over longer ones.

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What they tried

Their words about each treatment
  • Pacing · HelpedPacing is also really important. I remember doing really well for a week then I’d completely go down hill. In context ↗
  • vitamin D supplement · HelpedSomething that also changed the way I felt was a vitamin D supplement In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they wereAfter
—onset of CFS as a studentI’ve had the same thing happen to me In context ↗Not stated
—did well for a week then went completely downhillI remember doing really well for a week then I’d completely go down hill In context ↗Mild
2025-01-31vitamin D supplement changed how they feltSomething that also changed the way I felt was a vitamin D supplement In context ↗MildVitamin D and sun exposure

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI remember doing really well for a week then I’d completely go down hill In context ↗
  • Gut problemsstomach aches, nausea, and even more fatigue In context ↗

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