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ME/CFS Moderate → no benefit

Undiagnosed ME/CFS, filling days with hobbies, still no better

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Sep 2026
In their words
  • Condition: ME/CFSI know I'll eventually get a diagnosis and will feel better if not right now. In context ↗
  • At worst: ModerateI tell myself I'm on vacation from work ... I do a lot of low budget hobbies especially arts and crafts In context ↗
  • Now: No benefitI know I'll eventually get a diagnosis and will feel better if not right now. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Bluebell 94208 wrote of being ill without a diagnosis, filling days with low-budget hobbies, arts and crafts, films, music, audiobooks and manga, and sitting on the back porch for hours enjoying the weather. A pet cat, calls with a friend and small treats like a nice drink helped them cope, and they distracted themselves by framing it as a vacation from work. They expected to eventually get a diagnosis and feel better.

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