ME/CFS
Moderate → no benefitIll for 10 years
Over 10 years with ME/CFS, too exhausted to get up; sleeping pills no help
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 10 years
- Last post
- Feb 2022
In their words
- Condition: ME/CFS
I’ve been suffering with CFS for over 10 years now.
In context ↗ - At worst: Moderate
I don’t wake up until the afternoon and I often don’t even go downstairs to get food and greet my family until 3-4pm
In context ↗ - Now: No benefit
I’ve been suffering with CFS for over 10 years now.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user who had had CFS for over 10 years described being too exhausted to get up while their brain was in overdrive 24/7. They could not work or enter education and often did not go downstairs until 3–4pm because they were too tired or lacked motivation. Sleeping pills made them more tired without helping them sleep.
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What they tried
Also tried
sleeping pills· Worse
Their words about each treatment
- sleeping pills · Worse
I’ve tried sleeping pills, but they don’t work. They just make me even more tired, yet still unable to sleep.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| over 10 years before 2022 | CFS beganI’ve been suffering with CFS for over 10 years now.In context ↗ | Not stated |
| 2022-02-16 | still unable to work or study; sleeps until afternoonI’m currently unable to work or enter education ... I don’t wake up until the afternoonIn context ↗ | Moderate |
Adverse events
- “I’ve tried sleeping pills, but they don’t work. They just make me even more tired, yet still unable to sleep.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Too awake to sleep, too tired to get up
In context ↗