ME/CFS
RelapsedIll 3 years before improving or writing
ME/CFS came back with a vengeance after earlier full recovery
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 3 years
- Last post
- Aug 2019
In their words
- Condition: ME/CFS
was eventually diagnosed with CFS/ME at 24
In context ↗ - Now: Relapsed
but I fully recovered after a few months of antivirals ... the CFS/ME came back with a vengeance
In context ↗ - Began after: glandular fever or EBV
I had EBV when I was 22
Summary
Flint 28415 had EBV at 22, was diagnosed with CFS/ME at 24 and fully recovered after a few months of antivirals. A few years before 2019, an accident, several surgeries, an unknown viral infection and a diagnosis of Hashimoto's brought the illness back with a vengeance; they were also just diagnosed with non-cataplexy narcolepsy. In August 2019 they planned 3-4 months of high-grade antivirals then 8-12 months of low-grade antivirals and felt hopeful.
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What they tried
Also tried
antivirals· Helped a lot · wore offtry harder· Much worse
Their words about each treatment
- antivirals · Helped a lot
I fully recovered after a few months of antivirals
In context ↗ - try harder · Much worse
I still get super pissed thinking about the 6 month crash after a shitty pcp convinced me I just needed to try harder
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| age 22 | EBV at 22, diagnosed with CFS/ME at 24I had EBV when I was 22 and was eventually diagnosed with CFS/ME at 24In context ↗ | Not stated |
| — | 6-month crash after a doctor told them to try harderthe 6 month crash after a shitty pcp convinced me I just needed to try harderIn context ↗ | Not stated |
| age 24-25 | fully recovered after a few months of antiviralsI fully recovered after a few months of antiviralsIn context ↗ | Recovered |
| a few years before 2019 | relapse after accident, several surgeries and an unknown viral infection; Hashimoto's and narcolepsy diagnosedthe CFS/ME came back with a vengeanceIn context ↗ | Not stated |
| 2019-08-16 | about to start long-term antivirals, hopefulSo I’ll be starting 3-4 months of high grade antivirals then 8-12 months of low grade antivirals after that.In context ↗ | Not stated |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
the 6 month crash after a shitty pcp convinced me I just needed to try harder
In context ↗