Bedridden with ME/CFS and unrefreshing sleep, somewhat better on Xanax
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 10 years
- Last post
- Sep 2023
In their words
- Condition: ME/CFS
while bedridden
In context ↗ - At worst: Severe
while bedridden
In context ↗ - Now: Somewhat better
I sleep 10-12 hours and feel like I at least got "enough" sleep.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Coast 99752 described being bedridden with a high resting heart rate and barely getting 7-8 hours of unrefreshing sleep, waking at the slightest noise, light or smell. A doctor gave Xanax, which improved sleep to 10-12 hours and brought resting heart rate below 100; they were allowed to stay on it for now, still woke easily but could fall back asleep. Earlier trazadone, cyclobenzaprene and sleep aids only made them drowsy without helping.
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What they tried
Also tried
Their words about each treatment
- trazadone · No change
Doctors have given me trazadone, cyclobenzaprene, and sleep aids to help before but they all just made me drowsy without helping the issue really at all.
In context ↗ - Xanax · Helped
She gave me Xanax to try for a month and holy shit what a difference that made. I sleep 10-12 hours ... I can just fall back asleep.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | onset of illness, not describedI have gotten better sleep in the last month than I have in the previous decade combined.In context ↗ | Not stated | |
| recently before September 2023 | bedridden with a high resting heart ratesaw how high my resting heart rate was while bedridden.In context ↗ | Severe | |
| 2023-09-08 | Xanax improved sleep and resting heart rateI sleep 10-12 hours and feel like I at least got "enough" sleep.In context ↗ | Severe | Alprazolam (Xanax) |
Adverse events
- Trazodone (Desyrel)“Doctors have given me trazadone, cyclobenzaprene, and sleep aids to help before but they all just made me drowsy without helping the issue really at all.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I struggle with being a really light sleeper.
In context ↗ - Light & noise sensitivity
The slightest noise, smell, light would wake me up and just keep me up.
In context ↗ - Heart symptoms & palpitations
saw how high my resting heart rate was while bedridden.
In context ↗