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ME/CFS No benefit

ME/CFS getting worse over a very hard year; CBT gave no benefit

Condition
ME/CFS
At worst
Not stated
Ill for
a few years
Last post
Jan 2017
In their words
  • Condition: ME/CFSI was diagnosed a few years ago with cfs/me In context ↗
  • Now: No benefitThis year has been so hard on me and it seems to only be getting worse. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Stone 83885 was diagnosed with CFS/ME a few years before 2017, while still under 18, and was referred to a child psychologist for CBT, which they said never helped. After turning 18 they were dropped from paediatric care to a GP they described as uncaring, who told them to go to the gym, leaving them without CBT or regular professional support. At the time of writing they said the past year had been very hard and their illness seemed to be getting worse.

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What they tried

Also tried

Their words about each treatment
  • CBT · No changethey refered me to a child psychologist for CBT and it never helped me In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
a few years before 2017diagnosed with CFS/ME while under 18I was diagnosed a few years ago with cfs/me In context ↗
2017-01-16discharged from paediatric care to an unsupportive GP, still worseningThis year has been so hard on me and it seems to only be getting worse. In context ↗

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